Photo credit: Lorelei Voorsanger - http://photosbylorelei.com/
"Optimism is the faith that leads to achievement. Nothing can be done without hope and confidence."
- Helen Keller
Our sons Carson and Chase were diagnosed with MEPAN Syndrome in 2018 and now require help with every aspect of daily living.
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We established MEPAN Foundation in 2018 to drive collaborative scientific research focused on genetic and molecular insights, aiming to uncover the root causes of devastating conditions like MEPAN. Our mission is to change the course of these diseases and improve the quality of life for those affected — and the families who care for them.
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There are over 10,000 rare genetic conditions like MEPAN that affect more than 30 million people in the United States. Help us make a difference.